Hello everyone

first let me wish you all very good 2014, hope you all had a nice christmas

i wish i could have better topics to start a thread other than a stupid disease i have been diagnosed with,

first let me tell you all that in no way i am opening this thread for you guys to feel sorry for me, i am merely opening ths cause i need to write about it and bring it out to people as this is very stressing and makes me feel better to share with others my pain and disapointment with life it self.

unfortunately there is no know causes for this, and no easy cure, you can either choose to treat it with diet (no salt) and medicines which will take literally years to cure, some case reach 30 years, but the most common is 10 years, some cases can be less, and in this way you can loose 50% of your earing
or you can operate, the operation consists of completely removing your ear canals, (destroying your ears) therefore you will loose 100% of your earing and be completely deaf from that ear.

i have been suffering with several episodes (twice, 3 times a week) of diziness, nausea, puking, room spinning, fainting, earing loss and ear ringing for the last couple of months, and been on urgency hospital plenty of times without success of knowing what i might have, so after two months draging, i met a specialist doctor, who diagnosed me with Meniere's disease,

Meniere's disease is a Chronic disorder of the inner ear that causes spontaneous episodes of vertigo — a sensation of a spinning motion — along with fluctuating hearing loss, ringing in the ear (tinnitus), and sometimes a feeling of fullness or pressure in your ear. In many cases.
it is very rare to have it in my age seing it usually affects people on theyr 50s.

the bad part about this disease is the very bad symptoms which are devastating, such as:


- episodes of vertigo where the room spins making you dizzy as fuck vomiting, not being able to walk or even stand.
- Earing loss and ringing at this stage and after my earing tests, i have 30% earing loss already which will get worst with the years, the earing loss is for life
- Fullness of ear, i feel like my ear is full of water inside making it very uncomfortable
- Fatigue and depression, this disease makes you feel very tired all the time, and in the long therm leads you to depression and desperation, i only have it for two months and i already feel depressed, i cant believe i will have this for years.

other symptoms can be
-Headache that is unusual or severe for you
-Double vision or loss of vision
-Speech impairment
-Leg or arm weakness
-Loss of consciousness
-Falling or difficulty walking
-Numbness or tingling
-Chest pain

At this stage i am attacking it with several drugs (a total of 11 tablets a day) i sound like an 80 y old fella, but my life in the next years will be miserable and i need to prepare for such journey,

i hope i have the strength to pass this and not be weak to the point of suicide which to be honest i already tough only after two months of this, i will try and get a psychiatrists to help me on this as it is being pretty hard for me to cope with it,especially when i am living 3000km away from my WHOLE family, being far and unwell is an unbearable fact that can destroy me on this course, gladly i have a very comprehensive and helpful girlfriend living with me which is helping me a lot

I am very sorry to write all this but it made me feel a little bit better to put it all out

thank you for your time reading this

Damn, that really sucks...I will feel sorry for you even if you didn't really want that. Chronic diseases are never good, and with someone who likes music risking hearing loss sounds terrible. I really hope you get the best help possible from doctors, not sure what rights you have over there with work and economic help when sick, but I hope that will not be another problem.
Just remember that there are people here for you, to talk about cars, or just bullshit with when times get tough.

don't worry man u will pas this

living far away from my parents is bad and its killing me, but here in the UK i have free medicine and free doctors exams etc,in portugal i paid 35 euros just for an emergency on a bad episode of vertigo i had last month, i spent over 150 euros on medicines and doctors in the space of 3 weeks when i went on holidays to portugal, so i am glad i am working and living in the UK, which helps you on your sickness
i hope i do not get as bad as losing my job, lets see where this gets me, i have read about many cases of people loosing jobs or even be interned in a mental hospital due to mental breakdowns of several years of hard menieres symptoms

thanks a lot for your post, ( you to Dusan )

Shit go Hugo, that is shocking news.

Being such a huge influence to myself and I bet a lot of artists on here. If any time things get tough, please be sure to feel free and PM me or hop on for a chat to talk things out.

Depression is a bitch, I've been in and out of phases before, you aren't alone, so we got your back and will be there if you ever need, but you already know that.

Take it easy out there mate.

Thank you very much Hui, i am usually a strong headed person, so i hope i do not get to the point of depression, i am more worried and focused on the symptoms now, the vertigo episodes, altough i have been noticing abnormal heart activity (sometimes 180 bpm while in bed lol) and veeery high blood pressure due to nervous breakdowns while i have the episodes, it is a very tricky thing created by a very small part of the human body, life is a bitch for sure

hi, you start badly the year! I wish you all the best thing for this year and especially a good recovery
we are all with you

That really sucks Hugo. Just tell yourself "one more day" and keep yourself busy. I dont feel sorry for you! ( only because you said so.) Get well M8

Thanks Mars and Ta2man

you brought up a good point Ta2man, keeping myself busy might help me go trough this, but sometimes is hard to due to the symptoms

damn hugo ... well thats just all i can say is i wish you all the best and hope you can find a way to give this a place and fight through ...

one thing i can tell you ... i understand what pain is .. not going to talk about my own dramatic stuff here but lets keep it short and say i have been living with pain (daily) for about 6 years now .. sadly they cant find anything wrong .. but if your legs hurt and your skin of all your legs , like on toutch even .. and you have to work and take part in daily life .. well

the one thing that is important is try to .. and this is hard to explain in english ..

try to find a way to live with it and try to make the positive things in life even more important , like also use stuff like passions > hobby's > girlfriend and all stuff you like and love as a "drug"

again hard to explain but the positives in life are what can help you through the toughest times ....

one thing is a good thing they know what you have ...... but man thats really pffftt

and its a good thing you posted it here i can understand your meaning , sometimes you want to write it "off" your chest or just be able to talk about it ...

thats what bothers me often i look normal but am in pain every day , some periouds are better and some times i can barely walk .. but people dont understand .. hospitals failed to diagnose what is going on and therefore like people at work thing pffftt he is fine and what a ....

weird thing they diagnosed i have musscle strenght loss in my legs even , got needles in my musscles 2 times , they messured everything ... fysio training didnt help ...
arms strenght is fine but legs . hmmm not

but like i could write a whole story about myself and thats not the point here , just letting you know i can relate to pain and missery ....

so all i can say is keep your head up hugo and fight the mental side .. thats most important to stay above it mentally .. because if you allow it to make you misserable and down metally .. thats the worst part ...

hope you understand everything and again i wish you all the best !!!!!!!